Grandir

Lettre d'information et truc et machin

Sommaire
Issue 11
January-February 2007

 



 

Growing Up Info is published by Sidaction and Initiative Développement.
 
This issue was prepared by:
Caroline Gerbaud : c.gerbaud@id-ong.org
Dr Laurent Hiffler : l.hiffler@id-ong.org
Julien Potet : j.potet@sidaction.org 

Anna Ndiaye : a.ndiaye@sidaction.org

Thank you to the members of Growing Up's expert committee and to Harriet Hirshorn for their advice and support

More information on Initiative Développement at:
www.id-ong.org

More information on GROWING UP available at: www.sidaction.org/pro/
international/grandir


To subscribe or unsubscribe to Growing Up Info, please send an email to: grandir@sidaction.org

Introduction


The rate of HIV transmission from mother to child during breastfeeding ranges from 5% to 20% depending on the length of time the infant breastfeeds and the mother’s degree of immunosuppression. But replacement feeding, easy to recommend in richer countries, exposes a child in resource poor settings to serious health problems particularly linked to issues of potable water and hygiene. Feeding infants born of HIV+ mothers is therefore a major public health issue, which is the subject of lively debates among experts. Women face a real dilemma. Still, it is important to respect certain principles. Health professionals need to inform and help pregnant women living with HIV to choose the future method of feeding their baby in an informed way that is adapted to each woman’s individual situation. Health professionals also need to support the women in the choice they make.

To guide pregnant women, healthcare workers can use the AFASS methods defined by the WHO and UNICEF: “when replacement feeding is Acceptable, Feasible, Affordable, Sustainable and Safe, avoidance of all breastfeeding by HIV-infected mothers is recommended. Otherwise, exclusive breastfeeding for the first 6 months of life, or until AFASS criteria are met, is recommended.” This method combines individual criteria (risk of social stigmatization, access to potable water) with general criteria (access to infant formula, guarantee and quality of postnatal follow-up), which makes it difficult to understand and put into practice in the framework of large-scale programs.

The AFASS methods require relying on infant feeding nutrition counselors at PMTCT centers. Their presence helps avoid that mother and children are lost to care after birth, they contribute to integrate mothers and children in regular postnatal follow up and they play a key role in adapting the feeding regime of the child to his/her growth. However programs lack financing to hire these counselors and specific training on infant feeding in the context of HIV is all too rare! Growing Up Info dedicates this entire issue to the subject of feeding of infants born to mothers who are HIV+. And other articles will follow on this subject in upcoming issues!

Definitions

Here are 4 useful definitions to help you throughout the reading of this special issue.

1. Replacement feeding ( “artificial feeding” is sometimes used as a synonym): the mother does not breastfeed her infant ; the child must receive appropriate breastmilk substitutes (ex: infant formula)
2. Exclusive Breastfeeding (EBF): the mother breastfeeds her infant and no other food or drink, including water, is provided.
3. Mixed feeding : the mother breastfeeds her infant while also giving him/her : 

  • Infant formula and/or 
  • Animal milk and/or 
  • Semi-solid food and/or 
  • Solid food.

4.  Early cessation of breastfeeding: the mother completely stops breastfeeding, including suckling, when the infant is 4 or 5 or 6 months old. (“Early weaning” is sometimes used as a synonym but “weaning” actually refers to the transition after which all breastmilk is replaced by breastmilk substitutes).

To find out more
A comprehensive presentation of PMTCT and infant feeding (WHO/HHS-CDC Generic Training Package, Module 4, Feb. 2005)  www.womenchildrenhiv.org/
wchiv?page=pi-60-00

WHO : Experts Gather in Geneva to Review Infant Feeding and HIV

The WHO met with 50 experts on HIV and nutrition last October to review the latest information on infant feeding in the context of HIV. Some information was confirmed on the determinants of HIV transmission through breastfeeding, especially the increased risk of transmission in cases of mixed feeding. Above all experts identified four major difficulties: 1. limited access to counseling services on infant feeding, 2. Risks associated with early cessation of breastfeeding, 3. Feeding of HIV+ infants after 6 months, 4. Vulnerability of infants who are formula fed from birth.

1. The experts stressed the importance of providing counseling on infant feeding for pregnant women and mothers living with HIV. It is one of the major conditions of the success of replacement feeding methods! Women who opt for exclusive breastfeeding with early weaning should also receive additional support and counseling, particularly at key points such as at the time of cessation of breastfeeding.

2. Even if it helps to reduce the risk of post-natal transmission of HIV, early weaning (at 4-6 months) is associated with risks of malnutrition and increased morbidity. The WHO therefore encourages early weaning only if replacement feeding is acceptable, feasible, affordable, sustainable and safe at this age for both the mother and for the child. The AFASS criteria on starting replacement feeding should also be applied after 6 months of exclusive breastfeeding. If these criteria cannot be fulfilled, women should continue to breastfeed (even though this results in mixed feeding which theoretically exposes the child to an increased risk of HIV transmission).

3. Another important recommendation in the same vein: all children breastfed since birth who have had an early HIV+ diagnosis should not be weaned at 6 months but should continue to be breastfed, in accordance with the recommendations for infants in the general population.

4. Lastly, experts who met at the WHO meeting recalled the vulnerability of HIV-exposed non-breastfed infants who are enrolled in large scale field programs.  For example, there was a serious diarrhea epidemic in 2006 in Botswana among infants receiving replacement feeding.


In the field with Suzanne Kouadio, the Abidjan MTCT+ program nutritionist


In January 2007, we visited the MTCT+ program in Abidjan for Growing Up Info. This family ARV access program focusing on pregnant women is part of 2 primary health care centres (centre de santé Henriette Konan Bédié in the district of Abobo and centre de santé Niangon in the district of Yopougon). Women living with HIV receive PMTCT as well as comprehensive medical care and psychological and nutritional support for their families. In this particular context (urban, with relatively good access to potable water), women are counseled at the beginning of the third trimester of their pregnancy on infant feeding, concentrating on two options: 1) replacement feeding or 2) exclusive breastfeeding, weaning at 6 months. The team discusses the advantages and disadvantages of both methods with the women stressing that each woman make a realistic choice according to her individual and family situation (access to water, type of housing, partner information, in-laws’ influence) and on the importance of being able to maintain these choices over the long term. In this program, infant formula is not given out for free to women who have chosen to formula feed their infants during the first 6 months but access to formula is facilitated from 6 to 12 months for the poorest women. Women who have chosen exclusive breastfeeding with early weaning have a systematic free access to formula from 6 to 12 months. Around 1/3 of the women choose replacement feeding and 2/3 choose exclusive breastfeeding with early weaning. After their babies are born, the women come for an interview after their monthly medical consultation. During certain key periods like the weaning of the child, these interviews can take place weekly.

Suzanne Kouadio, the Abobo center’s nutritionist, invited us to into her office for the day.

The first mother who visited her office had given birth just two days before. Suzanne first made sure that the mother had given her baby Nevirapine as prophylaxis to reduce the risk of transmitting HIV through childbirth. She asked the mother about the family situation and took note that her 9-year-old daughter had never been tested for HIV. Suzanne then encouraged the mother to take her daughter to get tested during her next visit. Because of the trusting relationship between the mothers and Suzanne, she can give them this kind of advice. In the waiting room, Suzanne had noticed that the woman leaned forward to breastfeed her child, which she thought wasn’t the ideal position. In the office she asked the woman to show her how she breastfeeds her child and realized that the woman brings her breast to the baby rather than bringing the baby to the breast. Suzanne took a doll who she has named affectionately Christine and demonstrated the best way for her to hold her newborn when she breastfeeds him.

The second woman brought her 7-month-old son. The child had just been weaned, but the woman explained that he wasn’t interested in eating his baby food. Instead she fed him infant formula, in a bottle rather than in a cup. She has only one baby bottle and Suzanne recommended that she buy a second one. The mother’s points seemed contradictory: she explained that she had to buy milk every month, complementing the quantity given by the program; but at the same time she complained that she didn’t have enough money to buy soy and millet flour and sugar needed for the preparation of enriched baby food. Suzanne weighed the child. He hadn’t gained a gram since last month. Suzanne showed the mother her child’s growth curve and then explained that the stagnation in growth could point to a risk of malnutrition. Suzanne reminded her that it is essential to diversify the child’s diet and then set up an appointment in the days to come for another thorough demonstration of the preparation of baby food.

To make sure that mothers have understood her advice, Suzanne never hesitates to ask them to demonstrate what they do at home right in front of her. For example, another mother said that the baby food she is preparing for her 7 month old is too runny. Suzanne took out ingredients and utensils. The mother started mixing the baby food but not in the right proportions. Suzanne corrected the mixture, then lighted the stove in her office and patiently gave her nutritional advice. A few minutes later the woman had successfully made soy-enriched baby food with a perfect consistency. All she had to do now was feed it to her baby.

The MTCT+ program allows women to choose the feeding method that is most appropriate for their situation. It provides counseling on infant feeding right from the beginning of the antenatal period, and it guarantees regular postnatal follow up. The results are impressive: the rate of HIV transmission from mother to child is less than 5% and the regular postnatal follow up of mother and child makes it possible to rectify a situation before it leads to malnutrition. Suzanne has good reason to be proud of her work, and pin up in her office all the pictures of children whom she has helped to… grow up!

To find out more
Report of the expert meeting (WHO's website)
www.who.int/child-adolescent-
health/New_Publications/
NUTRITION/
consensus_statement.pdf









































To find out more
The MTCT+ program in Côte d’Ivoire is supported by:

ACONDA (NGO - Côte d’Ivoire)
www.acondavs.org/

Institut de Santé Publique, Epidémiologie et Développement 

(ISPED - Université de Bordeaux 2 - France) www.isped.u-bordeaux2.fr/

Columbia University (USA)
www.mtctplus.org/

To contact Abidjan/Abobo’s MTCT+ program:

(Dr Clarisse Amani-Bosse - coordinator) :
abclarisse@yahoo.fr

Should HIV+ Mothers Take Supplements While Breastfeeding?


Macronutrients:

It is often said that a mother who is breastfeeding has to “eat for two.” A mother who is breastfeeding does actually have increased nutritional needs. This all depends on the quantity of milk that she produces throughout the day. On average, a daily increase of 500 Kcal with 25g of additional protein is enough to cover the needs of breastfeeding (2 500 Kcal/day). In addition, HIV infection also increases energetic needs by around 10 % in cases of asymptomatic infection and up to 30 % in symptomatic adults. In Africa, these needs are rarely met and can affect milk production. If possible, women who have opted for exclusive breastfeeding should be enrolled in nutritional support programs (food distribution programs, home garden programs, etc.).

Micronutrients:

Vitamin A: as some studies have shown a potential relationship between vitamin A and an increased chance of transmitting HIV to a baby while breastfeeding, it is therefore recommended that mothers not exceed the daily requirement of vitamin A throughout the breastfeeding period. (Giving a child 6 months and older vitamin A supplements is recommended, however. Giving supplements to infants under 6 months is currently under study.)

BCE Multivitamins: on the other hand taking BCE multivitamins (without A) seems to have a positive effect on mothers, as well as on the transmission of HIV to the child from mothers with advanced immunosuppression, as shown by a study conducted in Tanzania involving more than 1000 women. And at 24 months, babies (HIV+ or HIV-) whose mothers took BCE multivitamins during pregnancy and while breastfeeding had higher CD4 counts and had experienced fewer episodes of diarrhea.

Iron: The issue of iron is particular. Anemia caused by iron deficiency must be rectified. But be careful not to exceed recommended doses! Because iron, through ferritin, stimulates HIV viral replication, which is not desirable for the mother, and which may increase risks of HIV transmission to the child. Also, for the mother, excess iron stored in the macrophages is associated with a greater risk of death and opportunistic infections (Candida, Pneumocystis J, mycobacterium).

Selenium: in people living with HIV who display lower amounts of selenium in their blood, HIV disease is liable to progress more rapidly. Several studies have shown the benefit of selenium supplements on the progression of the disease (fewer opportunistic infections and hospitalizations). A deficiency in selenium (as well as in vitamin E) is associated with an increased risk of mastitis. A daily supplement of 200 μg of selenium seems to be an appropriate risk-free dose for breastfeeding women living with HIV.

Conclusion:

Nutritional support should be undertaken to increase overall caloric intake for women who are breastfeeding, even if they are not on ART. The issue of micronutrients continues to be debated by experts. Supplementation of micronutrients is not an alternative to antiretroviral therapy but they are a significant and low cost element in comprehensive care. Some micronutrients can have a dangerous effect on the transmission of HIV from mother to child, especially if dosages are not respected. It is not recommended for breastfeeding mothers to take Vitamin A (beyond the amount included in a balanced diet). BCE multivitamins and Selenium play a positive role. Mothers should only take iron to treat anemia and should not exceed the length of time or dose prescribed.



New Methods: ARVs and Breastfeeding?


The vast majority of HIV transmissions from the mother to the child take place during the peri-natal period and the breastfeeding periods. The risk of post-natal transmission through breastfeeding is estimated at 20% depending on the length of time of breastfeeding (5% for exclusive breastfeeding for the first 6 months). Feeding newborns infant formula presents no risk of HIV transmission but presents a significant general risk of morbidity and mortality as in the case of the Botswana diarrhea epidemic among infants that were formula fed. Also, when the optimum conditions for formula feeding cannot be met, it is reasonable to recommend exclusive breastfeeding. Is it possible then to reduce the transmission of HIV from the mother to the child during breastfeeding? And what would be the best methods by which to do so?

Several studies or programs have tried to provide answers to these and other critical questions:

The first method is for the mother to continue triple therapy after childbirth regardless of whether ART is recommended for herself. How much this method is likely to reduce transmitting HIV to the baby has yet to be demonstrated. We also need to find out whether this method compromises the mother in terms of future therapies and evaluate the benefits as well as the potential toxicity of ARVs. The KiBS study in Kenya evaluated the issue of short-term tolerance of a NVP-based regimen and showed that women’s tolerance was comparable regardless of their CD4 count. The current controlled multicentric Kesho Bora study observes HIV transmission to the child while the mother continues triple therapy. The DREAM program in Mozambique, which has been going on for more than three years, reports a general HIV transmission rate of 1.9% among mothers who continued triple therapy throughout the breastfeeding period. Finally the first observations of the AMATA study in Rwanda will be presented in Paris in March. The results are very encouraging showing no HIV transmission during the six-month-long breastfeeding period in the observed group. This study is particularly interesting in that it uses the same combination therapies most common in Africa (d4T+3TC+NVP or AZT+3TC+EFV after 28 weeks of pregnancy). The drugs are passed on to the child through the milk, meaning that the child him/herself is exposed to treatment for several months, which may contribute to the efficacy of this preventive method. But the effect of exposing the HIV-uninfected child to these drugs for several months needs to be carefully evaluated.

The second method is to give the child a prophylaxis during the breastfeeding period: the idea being to protect the child who has been exposed to HIV in much the same way as prophylaxis is administered in cases of accidental exposure through contact with blood. The difference here is the duration of the exposure and the ensuing duration of prophylaxis. The MASHI study in Botswana gives AZT as prophylaxis for 6 months. The transmission of HIV at 7 month was higher in the group of infants who were breastfed (9% breastfed vs. 5,6 % infant formula-fed), but the mortality at this age was distinctly higher in the “infant formula” group. The current controlled PEPI study in Malawi compares NVP alone to a combination of NVP+AZT in children whose mothers practice early rapid cessation of breastfeeding at 6 months. Lastly, the PROMISE-PEP study to come will study a mono-prophylaxis of 3TC in children during a maximum of 9 months. Administering treatment for 9 months makes it possible to avoid early weaning (which is associated with high infant morbidity). By administering in 3TC prophylaxis to the child, his/her mother doesn’t have to take triple therapy if she doesn’t need to, so we can avoid the risk of compromising her future therapeutic options while her child takes a drug which is generally well tolerated and not toxic (3TC).

We impatiently await the conclusions of these studies. Even if one method is considered better than another, they are perhaps not mutually exclusive and represent new tools in the PMTCT arsenal. But, a word of caution—without definitive results, there is no scientific consensus at the moment on these methods, even if certain countries like Chad, for example, have already incorporated them into their national protocols.

To find out more
How much vitamins should be prescribed?

There is no consensus on the daily needs of people living with HIV.


Here are the doses that were used in the Tanzanian study: multivitamins without vitamin A (20mg B1, 20mg B2, 25mg B6, 100mg B3, 0,05mg B12, 500mg vitamin C, 30 mg vitamin E, and 0.8 mg folic acid).


A chart is also available on a WHO document (daily recommendation)

www.who.int/nutrition/
publications/WHO_WFP_
UNICEFstatement.pdf


More on home gardens :

www.fao.org/ag/agn/nutrition/
household_gardens_en.stm


Mastitis: Causes and treatment (WHO)

www.who.int/child-adolescent-
health/New_Publications/
NUTRITION/WHO_FCH_
CAH_00_13.pdf


To obtain the exact references of the studies we cited, contact us at:

grandir@sidaction.org







































To find out more
Résultats intermédiaires de l'étude AMATA : trithérapie durant l'allaitement maternel pour les femmes infectées par le VIH-1 et faisabilité de l'alimentation artificielle sur 548 couples mère-enfants au Rwanda (in French only): A. Peltier (Esther Luxembourg & Lux development) & co 

(Abstract n°3697 – 

4ème conférence francophone VIH/Sida, Paris 2007): 

http://62.50.131.112/vihparis/
public/index.asp


Presentation of the Kesho Bora study

www.who.int/reproductive-
health/stis/mtct/kesho_bora.htm


The DREAM program in Mozambique: 2005 Report

http://dream.santegidio.org/
public/Report/DREAM_
REPORT_3_2005_EN.pdf

Reader Survey Results 

Here are the results of the short survey that we sent you in Growing Up Info issue #10 to find out more about our readers and get your advice and suggestions. A big thank you to those of you who sent in comments and recommendations because these will in turn help us to better respond to your needs and expectations.

We received 70 responses, a large majority (over 50%) of which was from medical doctors. We also noted a sizable response from NGO leaders (23%) but a weak response from others in the healthcare field (8%). More than 40% of the readers who answered the questionnaire found out about Growing Up Info by directly receiving it as an e-mail. Out of the 10 issues of Growing Up Info, 43% of readers said they had read between 4 and 7 issues. The speed of the Internet connection that most of our readers have is low or medium. Finally, more than 40% of the readers had taken the initiative of telling people they thought likely to be interested in its content about Growing Up Info.

Regarding article length 70% liked the present length and a little over a quarter asked that articles be longer and more detailed. More than 85% of the readers who responded to the survey said they were generally satisfied with the content of Growing Up Info and the kind of information that it contains.

Here are some themes that our readers would like to see addressed in upcoming issues: tuberculosis and children -- HIV disclosure to the African child -- psychosocial care of children living with HIV -- ARVs and lipodystrophy in children – infant feeding and early weaning -- care of adolescents living with HIV -- parents and children sharing experiences regarding ARV treatment- -- adolescents’ access to voluntary testing.

We will take into consideration all of your responses so as to improve the quality of Growing Up Info in 2007.


A Clinical Case Study on Infant Feeding

Denise, 23, HIV+ and Edward, her 4-month-old baby, are in your office for post-natal follow up. During labour, Denise received a single dose of nevirapine and the newborn also received a single dose of nevirapine during the first hours of his life. Denise is not on antiretroviral therapy. She opted for exclusive breastfeeding. Edward has been taking cotrimoxazole as prophylaxis since he was 6 weeks old.

The clinical examination reveals signs of HIV infection in the infant: failure to thrive (-2,5 DS) and oral candidiasis, which hasn’t improved despite taking nystatin for the last 10 days. Since birth he has had two episodes of moderate diarrhea for which he has not been hospitalized, and the last episode has been going on for three weeks. Virologic testing (PCR) is not available in your area. You order CD4 count for Edward. The result shows a severe immunodeficiency for his age: CD4=18%.

  • Can we assume Edward is infected by HIV?
  • Should we decide to start Edward on antiretroviral therapy?
  • What advice would you give Denise regarding feeding her child in the upcoming months?









































Send us your reasoned arguments by email: grandir@sidaction.org
a book on HIV/AIDS goes to the winner!

HIV and Infant Feeding counseling job aids for nutrition counselors and mothers

In this special issue of Growing Up Info we want to draw your attention to the critical importance of the work that nutrition counselors do with pregnant women living with HIV.
Several organizations have developed tools to help them with counseling and supporting pregnant women living with HIV: reference guides, flipcharts, and take-home flyers designed specifically for counselors as well as for mothers.

The flipcharts and take-home flyers seem to us to be particularly useful in helping mothers choose the infant feeding option most appropriate to their own personal situation. These flipcharts also present clear and graphic instructions to practice the chosen infant feeding method.  Pregnant women and counselors will refer to them regularly before the child is born, as well as throughout the first few months of the baby’s life, whether they have chosen exclusive breastfeeding or replacement feeding. (Please note that it is no longer recommended to use home-modified animal milk for infants less than 6 months-- you should set aside these flyers and not use them.) The flipcharts are a very practical way to help mothers during the weaning period as well as to help stimulate a discussion with them on the feeding of their baby from 6 to 24 months. 

The WHO HIV and infant feeding counseling job aids (in English, soon to be translated into French) are generic tools that can be adapted to your own context just as Quality Assurance Project (QAP) in Tanzania did. (QAP’s job aids are available in English and in Swahili).

For those whose Internet speed is limited, you can consult the article "Counseling Mothers on Infant Feeding for the PMCT of HIV" produced by the Regional Centre for Quality of Health Care.

For those of you who are Francophone, you won’t have to wait for too much longer: l’Institut pour la Recherche et le Développement (IRD) is currently working on designing new tools in French, on infant feeding and HIV! We will let you know in an upcoming issue of Growing Up Info as soon as they become available. 

Post-Script: important guidelines for local programs

We have seen how hard it is to set up effective programs supporting alternatives to breastfeeding, whether it is replacement feeding programs or programs that encourage exclusive breastfeeding with early cessation at 6 months. But it is feasible to do so under certain conditions and in certain settings. In 2007 the Growing Up programme will provide technical and financial assistance to 6 programs conducting infant feeding counseling and support to HIV+ mothers and their newborns. Here are the 5 major issues to take into consideration for successful implementation of alternatives to breastfeeding in Africa:

1. Women’s informed choice must be guaranteed from the outset of the prenatal phase and at the end of your discussion the choice they have made must be supported. Women have to be actively encouraged to make the best choice for themselves in the context of their daily lives. It is essential to take the time necessary to explain both the advantages and drawbacks of each option, and to help them understand that once they have made their choice, it needs to be sustained over time and in every situation. This way they will more easily put into practice the method they have chosen.

2. Disclosure of HIV status to the partner is a critical piece of the success of alternative methods to breastfeeding. Feeding newborns infant formula exposes women to the influence of those around them who do not understand why the child isn’t being breastfed “like other children.” This is equally true for early cessation of breastfeeding. When the mother and her partner know each other’s HIV status, it makes it easier for them both to handle societal pressure and stigma. The partner can become an important ally in the acceptability of the alternatives.
.
3. Reasonable and guaranteed access to potable water is necessary for replacement feeding. Without direct access to potable water in the home or in common areas (courtyards etc) it is very difficult to practice replacement feeding correctly over the course of several months. Women who do not have access to potable water should be discouraged from choosing replacement feeding.
 
4.  Monthly post-natal follow-up of the infant including evaluating growth curves and nutritional counseling to prevent malnutrition is essential from birth to 9-12 months. At certain key points (for example at early cessation of breastfeeding) counseling should be reinforced.  Postnatal follow-up should be complemented, if the women agree, by home visits after birth or after weaning to evaluate exactly how the chosen feeding method is being carried out.

5. Access to infant formula has to be guaranteed for women who choose replacement feeding and the distribution of infant formula must be free and medically supervised. Infant formula distribution has to coincide with the monthly postnatal follow up appointments. Nutritional counseling must be renewed each time infant formula is picked up. These interventions must be monitored and the program should make a special effort to find the children they have lost sight of.

But the issue of HIV transmission through breastfeeding is far from being definitely settled. Much is expected from the results of the numerous ongoing research projects in order to enhance and to improve programmes in the field.

To find out more
WHO counselling cards and job aids

www.who.int/child-adolescent
-health/publications/
NUTRITION/HIV_IF_CT.htm


Quality Assurance Project's job aids

www.qaproject.org/strat/
stratHIVjobaidsintro.htm


Regional Centre for Quality of Health Care's counseling guide

http://rcqhc1.cfi.co.ug/modules/
UpDownload/store_folder/
Focus_Areas/HIV_AIDS/job_
aid_on_infant_feeding_
for_PMTCT.pdf
























To find out more

Presentation of field programmes supported by Grandir-Growing Up (in French only)

www.sidaction.org//pro/
international/grandir/terrain/